Here I collect events about ME/CFS, Lyme disease, multiple sclerosis (MS), ALS and multisystem diseases. Dates, locations and participation information are listed below. The list now also includes EDS/HSD, myasthenia gravis, amyloidosis and cross-disease rare disease events.
Research period: 1 November 2026 – 1 February 2028 · Listed chronologically.
ME/CFS
CURIVO ME/CFS-Kongress 2026
Date
–
Location
Online
Organiser
CURIVO
Format & audience
Online interviews · registration required
The CURIVO ME/CFS Congress is a German-language online event featuring recorded interviews about ME/CFS. The announced programme covers topics including gaps in care, pacing, nutrition and a range of medical and therapeutic perspectives. After registration, new interviews are released daily and, according to the organiser, each is available free of charge for 24 hours. A paid premium option is offered for permanent access.
Source: organiser’s website · Checked on 1 November 2026.
Lyme disease
Medumio Borreliose-Kongress 2026
Date
–
Location
Online
Organiser
Medumio
Format & audience
Online interviews · registration required
The Medumio Lyme Disease Congress is a German-language online event featuring recorded interviews about Lyme disease. The announced programme includes diagnostics, co-infections, nutrition and a range of medical and complementary approaches. After registration, interviews are released daily during the congress and, according to the organiser, each is available free of charge for 24 hours. A paid premium option is offered for permanent access.
Source: organiser’s website · Checked on 1 November 2026.
EDS / HSD
Listening Labs Part 2: EDS and HSD care
Date
15:00–17:00 CET
Location
Online · residents of the UK, USA or Canada only
Organiser
The Ehlers-Danlos Society
Format & audience
Free participation workshop · English
Participants help shape a model of care for Ehlers-Danlos syndromes and hypermobility spectrum disorders. The session reviews findings from earlier discussions. Attendance is free but requires an account and registration. Participation is restricted to residents of the UK, USA or Canada.
Source: organiser’s website · Checked on 1 November 2026.
MS · Carers
Support and relief for family carers
Date
17:00–18:00 CET
Location
Online via Zoom
Organiser
DMSG Landesverband Berlin
Format & audience
Free talk · open to anyone interested
The Berlin branch of the DMSG is offering an online talk about support and relief for family carers. Tatjana Stickel from the Charlottenburg-Wilmersdorf care support competence centre will present practical sources of help for everyday caring. The event is free and open to anyone interested. After registration, the Zoom access link will be emailed on the day of the event.
Source: organiser’s website · Checked on 1 November 2026.
ALS / MND
37th International Symposium on ALS/MND
Date
–
Location
RAI Amsterdam, Amsterdam, Netherlands
Organiser
MND Association
Format & audience
Scientific symposium · English
The MND Association’s international symposium focuses on research into ALS and other motor neurone diseases. Researchers meet to present findings and exchange scientific knowledge. The event takes place at RAI Amsterdam and is primarily intended for a medical and scientific audience. The organiser’s website provides the programme and participation details.
Source: organiser’s website · Checked on 1 November 2026. Additional source ↗
Rare diseases
RE(ACT) Rare Disease Research Congress 2027
Date
–
Location
Budapest, Hungary
Organiser
BLACKSWAN Foundation · ERDERA · IRDiRC
Format & audience
Research and care congress · paid registration · English
The congress connects rare disease research with questions of care. Topics include diagnosis, therapy development, health systems and lived experience. Patient organisations and families are explicitly included. In-person attendance in Budapest requires paid registration.
Source: organiser’s website · Checked on 1 November 2026.
Myasthenia gravis
MGFA National Patient Conference 2027
Date
–
Location
Hyatt Regency Huntington Beach, California, USA
Organiser
Myasthenia Gravis Foundation of America (MGFA)
Format & audience
Patient conference · English · registration details from organiser
The MGFA welcomes people with myasthenia gravis and their families. The focus is community, everyday life with the condition and scientific developments. The conference takes place at Hyatt Regency Huntington Beach. The MGFA publishes programme and registration details on its conference page.
Source: organiser’s website · Checked on 1 November 2026. Additional source ↗
Lyme disease
German Lyme Disease Society Annual Meeting 2027
Date
–
Location
Heilbronn, Germany · exact venue not yet announced
Organiser
Deutsche Borreliose-Gesellschaft
Format & audience
Scientific conference · medical professionals
The German Lyme Disease Society has announced its annual meeting for April 2027 in Heilbronn. The society describes its annual meetings as scientific conferences for physicians. The overview page does not yet provide an exact venue, a dedicated programme or a registration link. This entry is therefore an advance date announcement for a professional audience.
Source: organiser’s website · Checked on 1 November 2026.
Amyloidosis
National Amyloidosis Congress 2027
Date
–
Location
State Library of Queensland, South Brisbane, Australia
Organiser
Australian Amyloidosis Network
Format & audience
Medical professional congress · English
The congress is intended for healthcare professionals working in amyloidosis. National and international talks cover diagnosis, treatment and care. The venue is the State Library of Queensland in South Brisbane. Additional patient symposia are announced for May but are not listed separately here without confirmed individual dates.
Source: organiser’s website · Checked on 1 November 2026. Additional source ↗
ME/CFS
International ME Conference Week 2027
Date
–
Location
Not yet announced
Organiser
Invest in ME Research
Format & audience
Conference week being planned · attendance format to be announced
Invest in ME Research has announced its international ME conference week for late May and early June 2027. Plans include a research colloquium, a public conference and meetings for clinicians and early-career researchers. The series is intended to support international exchange on ME research. The venue, attendance format and individual programmes have not yet been announced, so this is currently a save-the-date entry.