News from our project, press coverage and public statements on ME/CFS and care for people affected by it.
Open letter
Open letter on ME/CFS to the German Society of Neurology
Sibylle Dahrendorf · Letter dated
Sibylle Dahrendorf asks the German Society of Neurology to respond publicly to questions about how it understands ME/CFS and approaches care. Her letter refers to accounts of the society’s 2026 congress and asks how it considers post-exertional symptom worsening, biomedical research and severe cases.
Lisa Häfner reports on a 19-year-old with severe ME/CFS and her family’s daily experience of providing care. The article describes the impact of light and sound sensitivity and why her mother has appealed for help with care at home.